<?xml version="1.0" encoding="UTF-8"?>
<?xml-stylesheet type="text/xsl" href="/sitemap_generator/default/sitemap.xsl"?>
<!--Generated by the Simple XML Sitemap Drupal module: https://drupal.org/project/simple_sitemap.-->
<urlset xmlns="http://www.sitemaps.org/schemas/sitemap/0.9" xmlns:image="http://www.google.com/schemas/sitemap-image/1.1">
 <url>
  <loc>http://create.rarediseasesnetwork.org/</loc>
  <lastmod>2026-04-03T06:47:20-04:00</lastmod>
  <changefreq>daily</changefreq>
  <priority>1.0</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/node/19</loc>
  <lastmod>2022-03-22T09:11:39-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/create-consortium-annual-meeting</loc>
  <lastmod>2024-09-12T09:21:27-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/research-discovers-protein-blood-can-help-predict-als-survival-and-decline</loc>
  <lastmod>2025-05-19T12:24:46-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/untangled-series-podcast-episode61</loc>
  <lastmod>2025-11-17T12:07:22-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/listen-our-latest-als-author-series-podcast</loc>
  <lastmod>2025-09-24T09:45:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/untangled-series-podcast-episode62</loc>
  <lastmod>2025-11-17T12:05:37-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/utangled-series-podcast-episode63</loc>
  <lastmod>2025-11-17T12:05:53-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/utangled-series-podcast-episode64</loc>
  <lastmod>2025-12-10T13:27:58-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/author-series-podcast-episode17</loc>
  <lastmod>2026-01-09T07:26:09-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/author-series-podcast-episode18</loc>
  <lastmod>2026-04-09T11:44:41-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/utangled-series-podcast-episode66</loc>
  <lastmod>2026-06-03T10:30:18-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/join-rdcrn-rare-disease-day-nih-february-27-2026</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/nih-announces-funding-establish-and-strengthen-rare-disease-research-groups</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/rare-research-report-january-2023</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/consortium-spotlight-advancing-discoveries-amyotrophic-lateral-sclerosis-and-related-disorders</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/rdcrn-research-roundup-july-2022</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/rdcrn-research-roundup-june-2022</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/occupational-lead-exposure-associated-shorter-survival-als-and-more-rdcrn-research-roundup</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/congenital-absence-muc5b-defines-new-category-genetic-respiratory-disease-and-more-rdcrn</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/characterizing-repetitive-behaviors-phelan-mcdermid-syndrome-and-more-rdcrn-research-roundup</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/rdcrn-research-roundup-april-2022</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/news/rdcrn-launches-contact-registry-connect-patients-researchers-and-advance-rare-disease-research</loc>
  <lastmod>2026-06-29T08:01:31-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/home</loc>
  <lastmod>2026-04-03T06:47:20-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/research-studies</loc>
  <lastmod>2023-09-07T07:05:47-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/clinical-sites</loc>
  <lastmod>2023-09-07T09:00:44-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/research-publications</loc>
  <lastmod>2024-07-25T09:21:19-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/patient-advocacy-groups</loc>
  <lastmod>2023-09-06T12:41:59-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/funding-opportunities</loc>
  <lastmod>2026-06-22T07:26:26-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/our-consortium</loc>
  <lastmod>2023-09-06T14:25:42-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/funding-opportunities/training-scholarship</loc>
  <lastmod>2026-06-22T12:22:40-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/funding-opportunities/pilot-projects</loc>
  <lastmod>2024-09-24T13:51:09-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/biorepository</loc>
  <lastmod>2026-01-15T09:50:34-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/resources/patients-families/create-podcasts</loc>
  <lastmod>2026-06-03T10:25:45-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/resources/patients-families/als-research-paper-review</loc>
  <lastmod>2025-01-21T11:38:38-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/brain-donation</loc>
  <lastmod>2026-04-06T09:40:29-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/diseases-studied</loc>
  <lastmod>2023-10-17T09:06:40-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/contact-us</loc>
  <lastmod>2024-01-24T13:11:51-05:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/subscribe-form</loc>
  <lastmod>2023-09-07T07:07:08-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/goals-mission-vision</loc>
  <lastmod>2023-09-06T10:10:11-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/meet-our-scholars/juliana-laverde-paz</loc>
  <lastmod>2025-03-24T12:02:11-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/meet-our-scholars/caroline-mchutchison</loc>
  <lastmod>2025-05-05T09:34:30-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/meet-our-scholars/melissa-nel</loc>
  <lastmod>2025-05-05T09:41:01-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/meet-our-scholars/hijai-regina-shin</loc>
  <lastmod>2025-03-24T12:22:43-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/meet-our-scholars/marijne-vandebergh</loc>
  <lastmod>2025-05-05T09:35:40-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/create-scholars/meet-our-team</loc>
  <lastmod>2025-09-15T12:37:10-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/ikjae-lee</loc>
  <lastmod>2025-05-15T12:53:03-04:00</lastmod>
  <priority>0.5</priority>
 </url>
 <url>
  <loc>http://create.rarediseasesnetwork.org/meet-our-team</loc>
  <lastmod>2026-06-11T10:46:06-04:00</lastmod>
  <priority>0.5</priority>
 </url>
</urlset>
