Working to advance
therapeutic development for
amyotrophic lateral sclerosis
and related disorders.
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CReATe Consortium Annual Meeting
Dr. Michael Benatar and the CReATe Consortium hosted their annual meeting in August.
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Rare Research Report: March 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
