Working to advance
therapeutic development for
amyotrophic lateral sclerosis
and related disorders.

Join Our Research Studies
Discover opportunities to participate in research and help further innovations in care for patients like you.
Find a StudyJoin the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025
Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

CReATe Consortium Annual Meeting
Dr. Michael Benatar and the CReATe Consortium hosted their annual meeting in August.
Image

Rare Research Report: March 2024
Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications.
