Latest News

Research Discovers Protein in the Blood Can Help Predict ALS Survival and Decline

This recent discovery can significantly improve predictions about the progression and survival of individuals with amyotrophic lateral sclerosis (ALS).

CReATe Consortium Annual Meeting

September 11 2024

Rare Research Report: March 2024

March 22 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Rare Research Report: September 2023

September 19 2023

Rare Research Report: February 2023

February 22 2023

Rare Research Report: January 2023

January 20 2023

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant