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CReATe Author Series Ep. 15 - Drs. Terry Heiman-Patterson and Michael Benatar on Clinical Guidance for ALS/FTD at-risk carriers

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Research Discovers Protein in the Blood Can Help Predict ALS Survival and Decline

May 19 2025

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CReATe Consortium Annual Meeting

September 11 2024

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Rare Research Report: March 2024

March 22 2024

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National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Rare Research Report: September 2023

September 19 2023

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Rare Research Report: February 2023

February 22 2023

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Rare Research Report: January 2023

January 20 2023

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