Latest News

New Blood-Based Biomarkers Predict the Arrival of ALS Symptoms

Researchers have discovered new biomarkers that can help predict the arrival of ALS symptoms, allowing early intervention that could prevent permanent motor damage.

Maps showing longitudinal trajectory of protein biomarkers before and after phenoconversion.

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

October 29 2025

Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

Listen to Our Latest ALS Untangled Series Podcast

October 20 2025

Listen to Our Latest ALS Author Series Podcast

September 24 2025

Listen to Our Latest ALS Untangled Series Podcast

September 9 2025

Research Discovers Protein in the Blood Can Help Predict ALS Survival and Decline

May 19 2025

CReATe Consortium Annual Meeting

September 11 2024

Rare Research Report: January 2023

January 20 2023

Consortium Spotlight: Advancing Discoveries in Amyotrophic Lateral Sclerosis and Related Disorders

July 28 2022