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Rare Research Report: September 2023

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below. Jump to:

Congenital Absence of MUC5B Defines New Category of Genetic Respiratory Disease and More: RDCRN Research Roundup

April 18 2022

Characterizing Repetitive Behaviors in Phelan-McDermid Syndrome and More: RDCRN Research Roundup

April 12 2022

RDCRN Research Roundup: April 2022

April 4 2022

Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

RDCRN Research Roundup: February 2022

February 3 2022

NIH Director Dr. Francis Collins References CReATe Consortium and ALS Research During FY2020 Budget Request

April 12 2019

CReATe Consortium initiates biomarker validation study in preparation for clinical trials

February 27 2019

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018