Latest News

CReATe Consortium Annual Meeting

Dr. Michael Benatar and the CReATe Consortium hosted their annual meeting in August.

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RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

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RDCRN Research Roundup: February 2022

February 3 2022

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RDCRN

NIH Director Dr. Francis Collins References CReATe Consortium and ALS Research During FY2020 Budget Request

April 12 2019

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CReATe Consortium initiates biomarker validation study in preparation for clinical trials

February 27 2019

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Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

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Central IRB Impact

June 1 2017

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RDCRN Investigators and Patient Advocacy Groups – A Partnership

June 4 2016

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Spotlight on RDCRN Consortia: The CReATe Consortium: ALS and Related Diseases

January 7 2016

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