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RDCRN Publishes First-Ever Annual Report

Read about research consortium achievements, early career investigators, patients and patient advocacy groups, and other network accomplishments.

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2026 RDCRN Annual Report

CReATe Consortium Annual Meeting

September 11 2024

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Learn more about CReATe.

Rare Research Report: January 2023

January 20 2023

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Consortium Spotlight: Advancing Discoveries in Amyotrophic Lateral Sclerosis and Related Disorders

July 28 2022

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Clinical Research in ALS and Related Disorders for Therapeutic Development (CReATe) logo

RDCRN Research Roundup: July 2022

July 6 2022

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RDCRN Research Roundup: June 2022

June 1 2022

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Rare Diseases Clinical Research Network logo with text: Research Roundup, #RDCRN

Occupational Lead Exposure is Associated with Shorter Survival in ALS and More: RDCRN Research Roundup

May 9 2022

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Congenital Absence of MUC5B Defines New Category of Genetic Respiratory Disease and More: RDCRN Research Roundup

April 18 2022

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Characterizing Repetitive Behaviors in Phelan-McDermid Syndrome and More: RDCRN Research Roundup

April 12 2022

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Scientist examining samples in the lab
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