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8005: Limited Phenotype DNA Sequencing (LPSeq)

Study Summary

This study will perform whole genome sequencing (WGS) on DNA samples previously collected from patients with ALS or a related neurodegenerative disorder on whom we have less phenotypic data than is collected through the CReATe Phenotype, Genotype, and Biomarker (PGB) protocol.


For Diseases

  • ALS (Amyotrophic Lateral Sclerosis)
  • ALS-FTD (Amyotrophic Lateral Sclerosis - Frontotemporal Dementia)
  • PLS (Primary Lateral Sclerosis)
  • HSP (Hereditary Spastic Paraplegia)
  • PMA (Progressive Muscular Atrophy)
  • FTD (Frontotemporal Dementia)
  • MSP (Multisystem Proteinopathy)

Background

The primary objectives of this study are:

  1. To generate whole genome sequencing (WGS) data from patients with ALS or a related disorder for whom less phenotypic data is available than is routinely collected through the CReATe Phenotype, Genotype, and Biomarker (PGB) protocol.
  2. To use this WGS dataset for genetic discovery as well as the validation of genetic discoveries made through the PGB cohort.

About This Study

This is a retrospective study as it performs whole genome sequencing on DNA samples that have previously been collected by investigators within the CReATe Consortium.


Enrollment Criteria

This is a retrospective study and is not enrolling any participants prospectively.


How to Participate:

Not open to prospective enrollment.